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COVID-19 Patient Database for Research

The COVID-19 Consent to Contact Registry Database (CCRD) is a means for researchers to connect with British Columbians who have experienced COVID-19, and contribute to improving care for COVID-19 patients.

A variety of research studies are taking place in a collective effort to study the effects of COVID-19. The COVID-19 Consent to Contact Registry Database (CCRD) contains the contact details of people who have previously tested positive for COVID-19 and have given their consent to be contacted about related research. Qualified B.C. researchers can access the registry and connect with participants about research opportunities across the province.

Researchers

Connect with Participants

Access to the registry is organized by the COVID-19 Clinical Research Coordination Initiative (CRCI). Researchers interested in accessing the registry must first submit their request through the CRCI Request Form.

In order to be considered for access, the following requirements must be met.

  1. Principal investigator of the study must:
    • have a faculty appointment at a public post-secondary institution with a Research Ethics Board in B.C.; OR
    • be a medical staff or employee appointment at a health authority with a principal investigator designation for a project in B.C.
  2. Study is related to COVID-19 research
  3. Study has approval from an academic Research Ethics Board in B.C.
The study will be reviewed by the CRCI based on the following: 
  • Relevance to provincial COVID-19 research priorities
  • The significance of the study’s results to the greater community
  • The urgency required in contacting COVID-19 patients
  • The need to access a diverse population of COVID-19 patients across B.C.
Patients

Participate in Research

If you have tested positive for COVID-19 and are interested in being contacted about COVID-19 research, you are invited to take part in our Consent to Contact Registry, endorsed by Dr. Bonnie Henry, B.C.’s Provincial Health Officer. 

What you need to know: 
  • By joining this initiative, approved researchers in BC may contact you about COVID-19 research by phone, text message, email, or mail.
  • You can learn about various research opportunities and decide if you want to participate in each research opportunity. 
  • By providing your e-mail, your name and contact information will be shared with REACH BC, and you will be sent an e-mail invite to sign-up for the platform.
If you are interested in being contacted about COVID-19 research, click on the link to fill in your information. You can choose to be removed from the registry at any time. 
I would like to participate

REACH BC
The CCRD is connected to REACH BC, an online platform that connects British Columbians to health research opportunities. Individuals in the registry over the age of 16 and with a valid email address will be sent a link to register for REACH BC automatically; however individuals can choose whether they want to register or not.  

There are many opportunities for people with or without COVID-19 to participate in research. There are a number of ongoing research projects studying different aspects of COVID-19 including efficacy of treatment, impact on mental health, and sample collection and testing.

Search the online REACH BC Directory for opportunities to participate in COVID-19 research and other health areas. Sign up as a REACH BC Volunteer to learn about future opportunities.

Learn more at REACH BC and create your REACH BC Volunteer account today. 

Privacy and Security
Measures are taken to ensure your information remains secure and private. Personal information included in the registry is maintained by the BCCDC and kept secure at the University of British Columbia. Your personal information is collected under the authority of section 26 (c) of B.C.’s Freedom of Information and Protection of Privacy Act (FIPPA). The information you provide will only be used for the purposes that were described. 

Questions regarding the collection of your personal information or requests for records may be directed to the Information Access Privacy office that supports BCCDC at privacyandfoi@phsa.ca or 604-707-5833.   

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Connect with Participants


Access to the registry is organized by the COVID-19 Clinical Research Coordination Initiative (CRCI). Researchers interested in accessing the registry must first submit their request through the CRCI Request Form.

In order to be considered for access, the following requirements must be met.

  1. Principal investigator of the study must:
    • have a faculty appointment at a public post-secondary institution with a Research Ethics Board in BC; OR
    • be a medical staff or employee appointment at a health authority with a principal investigator designation for a project in B.C.
  2. Study is related to COVID-19 research
  3. Study has approval from an academic Research Ethics Board in B.C.
The study will be reviewed by the CRCI based on the following: 
  • Relevance to provincial COVID-19 research priorities
  • The significance of the study’s results to the greater community
  • The urgency required in contacting COVID-19 patients
  • The need to access a diverse population of COVID-19 patients across B.C.
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SOURCE: COVID-19 Patient Database for Research ( )
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